Remembering Annie February 3rd 1995 - October 3rd 2009 Trisomy 18
Blood tests showed Annie had Edward’s syndrome, also called trisomy 18, when she was born. Annie had many medical needs, a poor suck that required tube feeding and holes in her heart.
Her mother was a single parent with six other children, and she could not provide the level of care Annie was going to need, especially as the doctors said trisomy 18 was incompatible with life.
But Annie had a tremendous will to live, and her very own guardian angel, an inspirational lady named Jane who was a single foster mother in her forties.
Jane had been caring for children with special needs for over 10 years, and when she was contacted by Social Services she instantly agreed to care for Annie during the short time Annie was expected to live.
At first Annie was very poorly, but Jane was able to take the tiny baby home when she was a few weeks old. Annie celebrated by turning blue, and this was the first of many emergencies that Jane managed in her calm and capable way.
Annie survived infancy.
Encouraged and cared for by Jane, annie amazed her doctors and passed precious milestones, smiling, and rolling, and giggling.
Every year Jane arranged great celebrations on Annie’s birthday, and took Annie out wearing her film star sun glasses to protect her light sensitive eyes.
Pink was Annie's favourite colour, she loved music, and adored Jane and each of her new brothers as they joined the family.
Jane and Annie were both very determined and remarkable people. In 2001 and 2002 Jane took Annie to America to take part in SOFT USA Conferences, but later as Annie’s heart condition worsened they confined their travels to England, and attended several SOFT UK Conferences. Annie joined facebook became famous world wide.
Annie died when she was 14 years and 8 months old.
Jane told her friends,
“It is with great sadness that I have to tell you my darling Annie grew her angel wings on Saturday, in my arms, at home, surrounded as always by so much love.”
One thousand four hundred and fifty pink balloons were released into the blue sky.
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